Hi Everyone
Wow, after several years of not really having much of a problem with this disease, It has come back with a vengengce.........I Have been in so much pain with this it's unreal......Years ago when first diagnosed, my Dr. put me on elavil and after months of taking it, I felt good........stopped taking it, and I really never went through any real bad pain from it again........Well for the last week or so, each day it's getting worse.......My hips, feet legs, well you name it...it is so painful, I'm losing it, I Know there are several people on this board who suffer with this, Has anyone found anything that works??
I'm walking like a 90 yr. old My hips are the worst, My feet & ankles are swollen again big time, but I Know that's something else.
Something new everyday, but man I'm hurting terrible today!!
Thanks
Love Dottie
Just stopped in to wish you well. Maybe stress brings it on? Im sure you will get responses. Take it easy.
Dottie, this is always a terrible time of year for me with the Fibromyalgia. I don't have many words of wisdom for you where the pain is concerned. Maybe you could get on a dose pack and get a Toradol injection. Stress is a big factor in this disease, so take it easy if you can. Try and not let small things bother you. Treat yourself to something nice, pamper yourself in some way, even if it means just laying in the bed and watching TV all day long. It is about time that your family helps you out here. Don't worry about housework, cooking, laundry or anything else, just rest and take care of yourself. I hope that you start feeling better really soon.
Dottie..just coming out of a 61/2 week run..I feel your pain wench...sorry...do you know what triggered it?(Does it matter?)The elavil has helped me a lot..it puts you into restorative sleep pattern...your pain is better the next day..all I an say is you think a flare will last forever...but it doesn't..I can also say that the oxycodone was a quick fix and in the long run only hooked me again and the pain was ultimately WORSE,,Sure hope you feel better soon...Love, Sharonn
Watch the tapes I sent ya!! You got them right?
Hey Sharonn
Just posted to kim (j&j gram) about choice to be happy.........Yeah lots of stress in this fu*king house right now, I'm moving the fu*k out.
As soon as I feel a little better....Might just go home to Connecticut, Can't take this sh*t anymore.
Love Dottie
Just posted to kim (j&j gram) about choice to be happy.........Yeah lots of stress in this fu*king house right now, I'm moving the fu*k out.
As soon as I feel a little better....Might just go home to Connecticut, Can't take this sh*t anymore.
Love Dottie
Stress will do it to you...hope you feel better.....S
Dear Dottie,Though I cant understand the pain from that I can understand chronic pain & I hope it gets better for you real soon.Take Care....mj
Wendy
So Sorry, Sh*t in my house is so bad right now, I Honestly thought I Had written to let you know that I Did get the tapes.........Thank you so much, you should not have gone through the expense of sending them fed-ex though!!
That was so sweet of you, and I truly do appriciate your thoughtfulness.
They are Audio Tapes though, & I'm glad cuz right now i'm staying in the guest room in my house & I have a cassette player in here.
Last night I Listened to the 1st one & turned it over to hear the other side, this side is where he's trying to get you to relax......Well, it must have worked cuz I fell asleep....LOL.......So when I woke up I tried it again........and I fell asleep again, I'm going to try it during the day & hopefully will stay awake, He is very good tho, I enjoy when I see him on TV.
Believe me Wendy, things are so bad at home right now, I Need all the help I can get......It was so sweet of you to send these to me, I really do appriciate it, your a good friend.....I'm going to be moving out very soon, as soon as I feel a little better, My ankles & feet are swollen really bad, It's even worse this time so just trying to work has been real hard........Under the present circumstances at home going to a Dr. right now is not possible, It's a long story, but, I Just can't wait till I can figure out what to do, so I can just leave.
Love Dottie
So Sorry, Sh*t in my house is so bad right now, I Honestly thought I Had written to let you know that I Did get the tapes.........Thank you so much, you should not have gone through the expense of sending them fed-ex though!!
That was so sweet of you, and I truly do appriciate your thoughtfulness.
They are Audio Tapes though, & I'm glad cuz right now i'm staying in the guest room in my house & I have a cassette player in here.
Last night I Listened to the 1st one & turned it over to hear the other side, this side is where he's trying to get you to relax......Well, it must have worked cuz I fell asleep....LOL.......So when I woke up I tried it again........and I fell asleep again, I'm going to try it during the day & hopefully will stay awake, He is very good tho, I enjoy when I see him on TV.
Believe me Wendy, things are so bad at home right now, I Need all the help I can get......It was so sweet of you to send these to me, I really do appriciate it, your a good friend.....I'm going to be moving out very soon, as soon as I feel a little better, My ankles & feet are swollen really bad, It's even worse this time so just trying to work has been real hard........Under the present circumstances at home going to a Dr. right now is not possible, It's a long story, but, I Just can't wait till I can figure out what to do, so I can just leave.
Love Dottie
Dottie, I'm sorry that you are going thru a bunch of poo right now. Things aren't real grand at my house either but I'm hanging on for dear life. Hang in there girl, things will get better. Take Care.
Wendy, I don't know what you sent to Dottie, but Thank You for helping her.
Wendy, I don't know what you sent to Dottie, but Thank You for helping her.
Sorry about that, I didnt even open them like I said. I thought they were VCR tapes. You might have sent an email and it got spammed, sorry if I missed it.
I have yelled at you HOW many times about the edema? You stubborn little lady...You must go in Dottie!
Your husband, your holing up because of him? That is not like you! Screw that. I know your beat down right now, but hang tough. DO NOT stay in your room! Im saying that cuz Im having flashbacks. I dont know if it is a temporary thing or if he has always been like that but life is too short as you know. Be well my friend.
I have yelled at you HOW many times about the edema? You stubborn little lady...You must go in Dottie!
Your husband, your holing up because of him? That is not like you! Screw that. I know your beat down right now, but hang tough. DO NOT stay in your room! Im saying that cuz Im having flashbacks. I dont know if it is a temporary thing or if he has always been like that but life is too short as you know. Be well my friend.
Thanks Pam
As long as I live in this house, Things will never get better, God know's Iv'e tried but sometimes things just can't be changed, Things can be changed, but people who think there is nothing wrong with them, (and it must be you) will never change.
Wendy sent me some audio tapes by John Edward, the medium, after my friend Carol died.......He is very good, & was very sweet of Wendy, she was trying to help me with the grief Of losing her, Hopefully It will help with the grief of losing Carol, & maybe it will help with all the bullsh*t I'm going through at home.
It was very sweet & I'm hoping it will be comforting as far as Carol is concerned
Love Dottie
As long as I live in this house, Things will never get better, God know's Iv'e tried but sometimes things just can't be changed, Things can be changed, but people who think there is nothing wrong with them, (and it must be you) will never change.
Wendy sent me some audio tapes by John Edward, the medium, after my friend Carol died.......He is very good, & was very sweet of Wendy, she was trying to help me with the grief Of losing her, Hopefully It will help with the grief of losing Carol, & maybe it will help with all the bullsh*t I'm going through at home.
It was very sweet & I'm hoping it will be comforting as far as Carol is concerned
Love Dottie
A friend of mine got on the show(and the couch) and was read by John...excellent reading....I have all his books...where the heck is he?????
Oh Dottie, I think John Edward is cool. I use to watch him on TV all of the time and now he doesn't come on here. I understand what you mean about not being able to change others but you can change your environment and that is one of the first things that they teach you in rehab ( that you may not like your spouse when you get clean and vice versa). Go see your friend, it sounds like it will do you a world of good and you might just grab the attention of your husband while you are away. MEN, can't live with em and can't live without em.........dayum..............In the mean time, I'm sticking to watching Sylvia Brown. Ewwwww, i'd love to be able to get in to see her or John. My friends in Cincy have been to their shows............Too cool........
Hi Dottie;
I had no idea you were having these problems. I am so sorry. Try to relax the swelling will subside.
Get a good nights sleep--Jeff
I had no idea you were having these problems. I am so sorry. Try to relax the swelling will subside.
Get a good nights sleep--Jeff
Wendy
Believe me, I'm not being stubborn about this edema, My husband is being CHEAP!!! Nothing new........The only one he worry's about is himself!!
Yes i'm holed up in the guest room with my dog & i'm not coming out till he goes to bed
Can't stand the sight of him
Love Dottie
Believe me, I'm not being stubborn about this edema, My husband is being CHEAP!!! Nothing new........The only one he worry's about is himself!!
Yes i'm holed up in the guest room with my dog & i'm not coming out till he goes to bed
Can't stand the sight of him
Love Dottie
Dear Twin:
I am so sorry for your pain and your other circumstances. I wish I could do something for both.
Wish you would move close to me. I know this area well, not high cost of living and we could get through this life together, we would have fun.
You may want to move close to your othr son, I don't blame you for wanting to put some distance there.
As soon as I read, my heart just ached for you. I know you are a tough woman and will do what has to be done but it will be even harder while you're in pain. I hope the pain is gone or close to it by now. This is Friday about noon. Your post was on the 3rd.
I'm here if you need to just blow off steam - whatever you want.
I had my 1st husband telling my little young son how lonely he was b/c of me and it stuck with my oldest. He always felt sorry for his Daddy, it never stopped. That made me so mad, I never told him that his Daddy didn't have to be lonely, just to find someone and stop partying with his friends EVERY night.
In the beginning, I wouldn't even let him take them at night b/c they would be at these parties, too. I was the bad guy but I didn't care. They went to one once and my middle who was the youngest at the time told me ALL that went on.
Please if there is anything you need or if you want to call and just blow off steam, I will listen.
I know David and I had our bad times about 5-6 years ago and I thought that was it and it was so much harder b/c I was older. I think the 1st time around, it was bad, but I was too young to know how bad it was. It's hard to even leave when you know that's what is needed to be done.
Love you,
Hope I can help in any way.
Love, Your Twin
I am so sorry for your pain and your other circumstances. I wish I could do something for both.
Wish you would move close to me. I know this area well, not high cost of living and we could get through this life together, we would have fun.
You may want to move close to your othr son, I don't blame you for wanting to put some distance there.
As soon as I read, my heart just ached for you. I know you are a tough woman and will do what has to be done but it will be even harder while you're in pain. I hope the pain is gone or close to it by now. This is Friday about noon. Your post was on the 3rd.
I'm here if you need to just blow off steam - whatever you want.
I had my 1st husband telling my little young son how lonely he was b/c of me and it stuck with my oldest. He always felt sorry for his Daddy, it never stopped. That made me so mad, I never told him that his Daddy didn't have to be lonely, just to find someone and stop partying with his friends EVERY night.
In the beginning, I wouldn't even let him take them at night b/c they would be at these parties, too. I was the bad guy but I didn't care. They went to one once and my middle who was the youngest at the time told me ALL that went on.
Please if there is anything you need or if you want to call and just blow off steam, I will listen.
I know David and I had our bad times about 5-6 years ago and I thought that was it and it was so much harder b/c I was older. I think the 1st time around, it was bad, but I was too young to know how bad it was. It's hard to even leave when you know that's what is needed to be done.
Love you,
Hope I can help in any way.
Love, Your Twin
Hi Jean
Things are the same here, still holed up in the guest room with the dog LOL
Until it's time to go to work, So funny what you said, about moving, I Will not leave the South now because of the kids, one is here the other is in Alabamba otherwise I would go home to Ct.
I Haven't figured out what to do, Never able to save any money cuz it all goes on my car payment & insurance..........wish I Never bought the damm thing,
Don't make much money at Publix, although I Work every hour they give me, & take other people's shift sometimes, but Thank you so much for thinking of me,
I'll figure it out I Guess eventually, but again Thanks my twin
Love Dottie
Things are the same here, still holed up in the guest room with the dog LOL
Until it's time to go to work, So funny what you said, about moving, I Will not leave the South now because of the kids, one is here the other is in Alabamba otherwise I would go home to Ct.
I Haven't figured out what to do, Never able to save any money cuz it all goes on my car payment & insurance..........wish I Never bought the damm thing,
Don't make much money at Publix, although I Work every hour they give me, & take other people's shift sometimes, but Thank you so much for thinking of me,
I'll figure it out I Guess eventually, but again Thanks my twin
Love Dottie
