Hi everyone
I am totally new to this board.; I live in Canada. This board seems to be very open minded and non judgemental so thought I would try it.
We do not have vicodin here but have been on Dilaudid 8 mg for almost 10 years now..yes 10 years. I have a medical condition that causes severe bone pain..My tolerance has gown to a ridiculous level and I feel a lot of shame for needing such a high amount. I saw a bone specialist who told me that the amount that i am on would cause most grown MEN to have aheart attack. I was humiliated..
I want to go to my Dr and ask to be switched to the weed pill. It is apparently available here and not even a triplicate Rx. I now that marajuana does work on the bone pain, but i have not smoked it because I am afraid of getting high. Use to smoke pot when i was young but one day had a major panic attack on it and literally stopped smoking it immedaitely thatwas 20 years ago but the memory of panic attacks has kept me from ever smoking it again.
Does anyone here have experience with withdrawing from Dialaudid, and if so, do you think that pot pill is a good alternative? Is it safer, less hurtful to ones body??? Pleasse dont suggest that i dont take anything and join an aa group.
I literally would kill myself from the bone pain if i did not have anything to take for it. The pain is not in my head, it is from an actual growth in my bone and
I spent a lot of time money and energy trying everything else out there before i resorted to taking a narcotic..
Thankyou for helping me. I so appreciate that everyone here seem non judgemental and really want to help.
Thankyou so much
Your new Canadian poster
Elisabeth
Welcome Elisabeth...!!
Boy you are in a tough spot. Sure your tollerence goes up after taking it for years but can you answer this? Do you take them when you are not in pain?
Boy you are in a tough spot. Sure your tollerence goes up after taking it for years but can you answer this? Do you take them when you are not in pain?
Welcome Elisabeth!You are in a very tough spot Diluadid is a derivitave of Morphine which means nightmarish withdrawls so I suggest you talk this through with you Dr. I don't know if you have ever gone through wds it is not fun and is physically and emotionally draining i don't think you will be able to just jump from one to another.I am not a Dr so you really need to talk to a Dr.The stuff your on is very very strong stuff.I am withdrawing from Oxycontin and its no walk in the park and I am sure the stuff your on is probably very close to what i was on so I wish you luck.AND LISTEN TO YOUR DR!!!
Dear Toodles,
Yes I have but only because if i have no pain for 36 hours i start to get w/d/. my legt or arm jerks suddenly and then my nose starts to run. Then i just take 1 pill and am fine. I seem to get the w/d symptoms almost exactly 36 hours fromlast dose....i guess this is how long it takes to leave my body.
I have not takenthem for mood or to get "high" I am just thankful they do work for the pain and allows me to lead an otherwisw normal life.
I would just feel much better to be on somethig that does not have the stigma and is not as hard on my body..
Other than smoking pot as a teen, I have never indulged in mood altering drugs and in fact got over panic attack episode ( which started one day while smoking pot) without the use of valium...That was one of the smartest things i have ever done was learn to get over the horrible panic attacks without taking valium. Im sure i would be still dealing with panic and on valium to this day if i hadnt.
I had the attacks for a bit more than a month and used to run into emergency or my drs just freakingout, thinking i was dying or going crazy...every doc wanted to put me on them but i just instinctively knew that i needed to know when i was feeling what and not be medicated..as i ay i never touched pot again because of it.
Sorry to go on...
Thanks for your posting,
Elisabeth
Yes I have but only because if i have no pain for 36 hours i start to get w/d/. my legt or arm jerks suddenly and then my nose starts to run. Then i just take 1 pill and am fine. I seem to get the w/d symptoms almost exactly 36 hours fromlast dose....i guess this is how long it takes to leave my body.
I have not takenthem for mood or to get "high" I am just thankful they do work for the pain and allows me to lead an otherwisw normal life.
I would just feel much better to be on somethig that does not have the stigma and is not as hard on my body..
Other than smoking pot as a teen, I have never indulged in mood altering drugs and in fact got over panic attack episode ( which started one day while smoking pot) without the use of valium...That was one of the smartest things i have ever done was learn to get over the horrible panic attacks without taking valium. Im sure i would be still dealing with panic and on valium to this day if i hadnt.
I had the attacks for a bit more than a month and used to run into emergency or my drs just freakingout, thinking i was dying or going crazy...every doc wanted to put me on them but i just instinctively knew that i needed to know when i was feeling what and not be medicated..as i ay i never touched pot again because of it.
Sorry to go on...
Thanks for your posting,
Elisabeth
DearWhat have i done,
Of course i would talk to my Dr about being tapered down from here before switching over. Just wanted to now if anyone else has had success with this switch to weed pill for pain.
Wishing you well,
Elisabeth
Of course i would talk to my Dr about being tapered down from here before switching over. Just wanted to now if anyone else has had success with this switch to weed pill for pain.
Wishing you well,
Elisabeth
In my opinion, it sounds like you are not abusing the meds
You may have to take one to prevent w/d's cause your body is physically dependant, but you are not taking it just to get the high
There is a HUGE difference between physical dependance (which always will happen with opiates) and actual addiction!!!
IMO - you are not an addict!!!
If what you have said is honest, then you have no reason to feel any shame!!!
There are some people that have severe pain that only using narcotics give them any quality of life - you said that you tried other non-narcotic options too.
Talk to your Dr about your concerns.
But again, you are NOT an addict!!!
Have you ever visited any of the forums on the net that are specifically for those in your situation???
I think one is called Healingwell.com
Maybe do some reading & posting there too
I hope it can help you not feel shame if you truely need the meds
Meds are there for a reason!!! Unfortunately, most of us here were abusing them and using HUGE amounts just to get the high, numb ourselves, etc....
Good luck hun!!
You may have to take one to prevent w/d's cause your body is physically dependant, but you are not taking it just to get the high
There is a HUGE difference between physical dependance (which always will happen with opiates) and actual addiction!!!
IMO - you are not an addict!!!
If what you have said is honest, then you have no reason to feel any shame!!!
There are some people that have severe pain that only using narcotics give them any quality of life - you said that you tried other non-narcotic options too.
Talk to your Dr about your concerns.
But again, you are NOT an addict!!!
Have you ever visited any of the forums on the net that are specifically for those in your situation???
I think one is called Healingwell.com
Maybe do some reading & posting there too
I hope it can help you not feel shame if you truely need the meds
Meds are there for a reason!!! Unfortunately, most of us here were abusing them and using HUGE amounts just to get the high, numb ourselves, etc....
Good luck hun!!
Dear Swizzle,
Thankyou SO MUCH for your post. Yes those were truthful answers. When i first started to get w/d i was scared and went to my Dr. He said the same thing you did, said i havent dr. shopped, lost rxs, run out early etccc and explained about tolerance. I know I shouldnt feel the shame but do. I would give anything to be able to be like a normal person and take just normal tylenol for pain. Right or wrong, there is a stigma attached to taking narcotics and I would feel so much happier not to need a nrcotic...
I know i may sound ungrateful. Id be dead without having relief from bone pain. Is it wrong to want to have a gentler non narcotic relief to pain? I dont know its allover whelming..
Ive been reading your story and think you have a greatattitude...God bless you
Thankyou so much.
Elisabeth
Thankyou SO MUCH for your post. Yes those were truthful answers. When i first started to get w/d i was scared and went to my Dr. He said the same thing you did, said i havent dr. shopped, lost rxs, run out early etccc and explained about tolerance. I know I shouldnt feel the shame but do. I would give anything to be able to be like a normal person and take just normal tylenol for pain. Right or wrong, there is a stigma attached to taking narcotics and I would feel so much happier not to need a nrcotic...
I know i may sound ungrateful. Id be dead without having relief from bone pain. Is it wrong to want to have a gentler non narcotic relief to pain? I dont know its allover whelming..
Ive been reading your story and think you have a greatattitude...God bless you
Thankyou so much.
Elisabeth
E,
You said: I am totally new to this board.; I live in Canada. This board seems to be very open minded and non judgemental so thought I would try it.
Welcome to the board! This board can be judgemental at times so don't hold your breath about that one-LOL
Now as far as me suggesting AA and you not taking pills for your pain, I will not do that. If you don't want to go to meeting that is fine by me.. That is a personal choice. I hope you and your doctor will come up with a plan to stop your pain. Nobody should have to live in pain and not have quality of life. Weather it's another medication or the " weed pill" you were refering to I hope you find something that works for you.
Good luck and hope to see you posting more. I read a few posts from you earlier that are now removed. Although some are offended by you copying and pasting words from another message board, I was not offended. As a matter of fact I agree with many things that were said. Many of those same words have been used on this very board in the past so it doesn't surprise me some would be offended.. So you may not want to do that anymore. You know try and keep the peace and just stick to your story.. Take care and have a good weekend.
Rae
You said: I am totally new to this board.; I live in Canada. This board seems to be very open minded and non judgemental so thought I would try it.
Welcome to the board! This board can be judgemental at times so don't hold your breath about that one-LOL
Now as far as me suggesting AA and you not taking pills for your pain, I will not do that. If you don't want to go to meeting that is fine by me.. That is a personal choice. I hope you and your doctor will come up with a plan to stop your pain. Nobody should have to live in pain and not have quality of life. Weather it's another medication or the " weed pill" you were refering to I hope you find something that works for you.
Good luck and hope to see you posting more. I read a few posts from you earlier that are now removed. Although some are offended by you copying and pasting words from another message board, I was not offended. As a matter of fact I agree with many things that were said. Many of those same words have been used on this very board in the past so it doesn't surprise me some would be offended.. So you may not want to do that anymore. You know try and keep the peace and just stick to your story.. Take care and have a good weekend.
Rae
elisabeth,
I know that there is a stigma with taking narcotics for pain, but there should not be - for LEGIT pain!!!! Think of it this way, without the pain meds, what would your quality of life be like???? Some non-narcotic meds DO work for SOME types of pain, but not all. It sounds like yours is very bad. I think that as long as you are honest & open with your Dr, you should not feel bad if he thinks that these are the meds that you need to take - just continue to communicate with him. I do understand how you feel though!! I have family in the exact same spot. Please remember that there is a HUGE difference between dependance and addiction!! I abused the pain meds and can never take them again. (With the exception of something major like surgery - and if that happens, I can't be the one in control of the meds, someone else will have that control)
I would not stop trying to find alternatives, but as of today, there may not be one for you. In the future as medicine progresses, there probably will be.
And you do not sound ungrateful - so no worries, ok?!
Thank you for the nice things you said about me - it put a smile on my face!!
:-)
Did you try to find that website I mentioned??
I think it is Healingwell.com
Please check it out - you will find many others like yourself there.
(Not saying you are not welcome here!! Cause everyone is welcome)
I will keep you in my prayers!!!!
Lots of pain-free prayers going out to you!!
:-)
Swizzle
I know that there is a stigma with taking narcotics for pain, but there should not be - for LEGIT pain!!!! Think of it this way, without the pain meds, what would your quality of life be like???? Some non-narcotic meds DO work for SOME types of pain, but not all. It sounds like yours is very bad. I think that as long as you are honest & open with your Dr, you should not feel bad if he thinks that these are the meds that you need to take - just continue to communicate with him. I do understand how you feel though!! I have family in the exact same spot. Please remember that there is a HUGE difference between dependance and addiction!! I abused the pain meds and can never take them again. (With the exception of something major like surgery - and if that happens, I can't be the one in control of the meds, someone else will have that control)
I would not stop trying to find alternatives, but as of today, there may not be one for you. In the future as medicine progresses, there probably will be.
And you do not sound ungrateful - so no worries, ok?!
Thank you for the nice things you said about me - it put a smile on my face!!
:-)
Did you try to find that website I mentioned??
I think it is Healingwell.com
Please check it out - you will find many others like yourself there.
(Not saying you are not welcome here!! Cause everyone is welcome)
I will keep you in my prayers!!!!
Lots of pain-free prayers going out to you!!
:-)
Swizzle
Eliz, I really don't see where your abusing these. It doesn't sound like you have a problem it is just a natural physical issue with you. Your doctor Im sure is aware of that, he knows you arent abusing so I would ask him for advise on tapering.
hey everyone
Thanks for your post.
Noone had the right to take that post off as i had permission from thr poster himself. none else's resposes were put on. Thats nuts. Its also exactly why i would never post at the PA site. New comers are attacked and this man was telling me in a chat room about it...he SAID he ( in chat) didnt mind, said he is doing rersearch for his patients or soemthing....
Ilive in canada and the weather is getting cold. Calgary is already in the inuses and it makes my condition worse. I am going to my Drs today and ask whther he can transfer me over to the weed pill but imagine that he will need to taper me off the dilaudid first...
Im trying to find some other specialist in this town that can help me with the whole chronic pain thing...
why are the 12 steppers coming over here and taking out posts? they have theirs.I had permission to print it here. What gives them the right???
Thank you for all yur opinions its appreciated,
Yours,
Elisabeth
Thanks for your post.
Noone had the right to take that post off as i had permission from thr poster himself. none else's resposes were put on. Thats nuts. Its also exactly why i would never post at the PA site. New comers are attacked and this man was telling me in a chat room about it...he SAID he ( in chat) didnt mind, said he is doing rersearch for his patients or soemthing....
Ilive in canada and the weather is getting cold. Calgary is already in the inuses and it makes my condition worse. I am going to my Drs today and ask whther he can transfer me over to the weed pill but imagine that he will need to taper me off the dilaudid first...
Im trying to find some other specialist in this town that can help me with the whole chronic pain thing...
why are the 12 steppers coming over here and taking out posts? they have theirs.I had permission to print it here. What gives them the right???
Thank you for all yur opinions its appreciated,
Yours,
Elisabeth
