well, I am in the process of trying to make an appt with a pain management doc in Rapid City. It is slow going because my doc office here had to mail all my paper work, so, once they get that, they will go over it and get a hold of me and set up an appt for me. I'm not real sure what a pain management specialist is... but, it's another step for me to take. I am hoping they will deal with the cyst in my spine or find someone who will! I feel if i got that removed, the pain would be less or gone! and my arthritus doc said the same thing.
anyway, doing better with my paid meds. I got off the duristigic patch and wow! what a differance that made! I feel more better. and taking less pecocets! i honestly think i was getting way too much narcotics in my body! i lost a lot of weight. got down to 103! YIKES! but I am back up to 106!! that makes me happy! I hate being so skinny! i feel it makes me look sick! and i don't feel healthy being that skinny! but since i've been off the patch, i eat all the time! LOL and I am cooking once again and functioning a lot better!
as for the percs, i am taking anywhere from 4 to 8 a day. depending on the pain. i go as long as i can without taking one. and as for the valuim, my doc upped my dose (5mg) to four a day. but i am down to taking 2 a day. SOMETIMES 3 but, not very often.
I know i have legit pain, due to my cyst, but I still want off the pain meds! does anyone have a simalure situation? does anyone have any suggestions? any exercises that might help? ANYTHING???? like i said before, i will read anything and take in concideration any and all suggestions.
oh by teh way, the reason i said in my topic title...if you care... is because i really don't feel the support on this message board. sorry, but, i just don't. but i need somewhere to turn and am hoping that if i keep posting, i will feel it eventually. I do have to say there are a couple of you out there that are very helpful, caring and supportive...and I really thank you! and I have made a couple of friends! which is awesome! and I want to thank those of you for being here for me! and I also want to you to know that I am here for you... I will listen and give what advice i can, which probably isn't much, but i do care about each and every one of you!
we are all in this together and we will all pull through one way or the other!
I pray every day and not just for me, but for all of you! GOD walks with us and keeps us safe. He only gives us what we can handle... well, starting to rethink that thought because I can't handle much more! lol
anyway, i'm blabbling....so... thank you for reading my post and caring! hope to hear from you and GOD BLESS all of us!
Jac
Jac quote
I don't know what you expect people to do?
People are coming here trying to find ways to stop taking pills not learning how to take them?
You might feel more comfortable on a message board that deals with people who are in pain and have to take medication.
What we deal with here are issues relating to recovery and abstinence.No one has ignored you.It may have to do more with not knowing what to say to you.
Good Luck
| QUOTE |
| the reason i said in my topic title...if you care... is because i really don't feel the support on this message board. |
I don't know what you expect people to do?
People are coming here trying to find ways to stop taking pills not learning how to take them?
You might feel more comfortable on a message board that deals with people who are in pain and have to take medication.
What we deal with here are issues relating to recovery and abstinence.No one has ignored you.It may have to do more with not knowing what to say to you.
Good Luck
You now Tim, I don't EXPECT people to do anything FOR me! and I am TRYING TO STOP TAKING THEM, TOO!!!! I'm NOT trying to push them on anyone... I am TRYING to find answers!!!! and I thought this might be the place to find them! I thought just MAYBE someone would have an encouraging word or two for me! I THOUGHT someone might be able to realate to me and say, Hey, WE ARE HERE FOR YOU! TO HELP YOU QUIT!!!
Do you really think i am happy taking the damn pills? well obviously I'm not because here I sit posting ASKING for advice and TRYING to be here for others! I have been PRAYING, and not just for myself but for EVERYONE on here!
I HATE this just as much as everyone else!
I'm not "learning" how to take them! I am TRYING TO GET OFF OF THEM! and I turned here for support and help!
well obviously I turned to the wrong place.....as i said before, i have felt NO support from this place and now I REALLY feel UNWELCOME! thank you very much!
Do you really think i am happy taking the damn pills? well obviously I'm not because here I sit posting ASKING for advice and TRYING to be here for others! I have been PRAYING, and not just for myself but for EVERYONE on here!
I HATE this just as much as everyone else!
I'm not "learning" how to take them! I am TRYING TO GET OFF OF THEM! and I turned here for support and help!
well obviously I turned to the wrong place.....as i said before, i have felt NO support from this place and now I REALLY feel UNWELCOME! thank you very much!
| QUOTE |
| as i said before, i have felt NO support from this place |
That's simply not true.I saw people respond to your threads the other day.I responded.
If you are serious about stopping,people will help you.You can't get so defensive and be patient.There may be reasons that have nothing to do with you why the board is slow.It could be the time of day?
Stick around
That's great Jac that you have tapered yourself down and are taking the next step. I am very proud of you. I know that you are in a lot of pain which just makes it soooo much harder to do the right thing. It's hard with all the 'red tape' you have to deal with and the financial situation to get better.
Keep your head up and know that your not alone and more importantly that you are doing the best you can under the circumstances. I am proud of you.
Good luck and God Bless!
Keep your head up and know that your not alone and more importantly that you are doing the best you can under the circumstances. I am proud of you.
Good luck and God Bless!
Cass, thank you so very much!!! I NEEDED to hear that! that is what I need right now is support! and i am trying! REALLY!! but, as you know per our emails.... LOL
thank you for being here for me! as I will be here for you, too!
How you feeling????
GOD BLESS....
jac
thank you for being here for me! as I will be here for you, too!
How you feeling????
GOD BLESS....
jac
Im feeling very depressed and very opressed living where I live and not being able to find a job is really bringing me down. When I lived in the bay area (San Francisco) I never had a problem having two jobs let alone one. Now......I can't find anything and I feel like a useless human being hahaha. Sorry you asked huh?
Sorry but I just feel pretty much beaten up or should I say beaten down......But this is about you.
I know once MJ gets on the board she will have some good words of wisdom for ya. Smile everything is going to be fine. God has a plan and remember he knows everything were going to do before we do it and he still loves us through it!!!!
Sorry but I just feel pretty much beaten up or should I say beaten down......But this is about you.
I know once MJ gets on the board she will have some good words of wisdom for ya. Smile everything is going to be fine. God has a plan and remember he knows everything were going to do before we do it and he still loves us through it!!!!
Dear Jac:
Wow I can't believe it! Finally I have found someone with the same diagnosis as I have...I too have a cyst on my spine pressing on the spinal nerves! And the surgeons don't want to touch it...They say the risks outweigh the benefits....Ummmm dude, I can't walk or stand more than 10mins at a time! The only thing that releives the pain in my feet, legs, hips is to go sit down! I tried pain management, tried opiates. Personally the opiate drugs didn't work and don't work for most nerve pain...Believe me I have researched this to death! The only thing a pain clinic wanted to do is Rx meds. Not good. For me I wish they could operate, drain the cyst or excise it out...but they seem hesitant to do that...So I feel stuck like you do....My sympathies Jac, and if you find an answer let me know...I can totally relate to the pain and frustration you are feeling....
Hugs,
Jan
Wow I can't believe it! Finally I have found someone with the same diagnosis as I have...I too have a cyst on my spine pressing on the spinal nerves! And the surgeons don't want to touch it...They say the risks outweigh the benefits....Ummmm dude, I can't walk or stand more than 10mins at a time! The only thing that releives the pain in my feet, legs, hips is to go sit down! I tried pain management, tried opiates. Personally the opiate drugs didn't work and don't work for most nerve pain...Believe me I have researched this to death! The only thing a pain clinic wanted to do is Rx meds. Not good. For me I wish they could operate, drain the cyst or excise it out...but they seem hesitant to do that...So I feel stuck like you do....My sympathies Jac, and if you find an answer let me know...I can totally relate to the pain and frustration you are feeling....
Hugs,
Jan
Jan! Wow! i can't believe it! someone else going through what I am! It sucks! doesn't it! and i agree with what you say. pain meds really don't take the pain away, but for me it helps take the edge off. but, on the other hand I hate taking them.
where do you live? i live in a very small town with limited doctors. and limited knowledge. but the one spine specialist I went to said he wouldn't touch it either. with the risks being too high. what I don't understand is, why can't they just drain it? he didn't give me details...
Would really like to talk to you more about all of this if you don't mind. My email address is jac_1371@yahoo.com. feel free to email me and maybe we could compare notes. but I'm sure you have more notes then i do. i have done some research, but not a lot.
not sure where to turn to or anything....????
I wish you the best of luck and hopefully we can figure something out! i hate this!
and yes, i understand, i can't stand for very long either. my doc said "no standing no standing jobs" sooooo
take care and hope to hear from you soon!
thanks for replying back to me and sharing!
jac
where do you live? i live in a very small town with limited doctors. and limited knowledge. but the one spine specialist I went to said he wouldn't touch it either. with the risks being too high. what I don't understand is, why can't they just drain it? he didn't give me details...
Would really like to talk to you more about all of this if you don't mind. My email address is jac_1371@yahoo.com. feel free to email me and maybe we could compare notes. but I'm sure you have more notes then i do. i have done some research, but not a lot.
not sure where to turn to or anything....????
I wish you the best of luck and hopefully we can figure something out! i hate this!
and yes, i understand, i can't stand for very long either. my doc said "no standing no standing jobs" sooooo
take care and hope to hear from you soon!
thanks for replying back to me and sharing!
jac
Hey Jac,
You are the first person I have talked to that has the same issue LOL...That and the pp's that is! I think it can be drained but that involves implanting a shunt in your back to drain the cyst...and the results are iffy...to cut it out is a real danger for paralysis depending on where in the spine it is. Mine is on the spinal nerves. So while I have a hard time functioning right now at least I can still get around somewhat! Let me ask you Jac, do your feet go completely numb and then the bad pain comes? It is so weird. And getting off my feet completely is the only thing that makes it go away. My husband and I went to a concert a few weeks ago at the local Casino and my God, I kept looking at the wheelchairs lined up that the public can use. I should have, but that damn stubborness I have wouldn't allow it. What a jerk I was. I paid for pushing it all the following week. My feet couldn't touch the floor without hurting!...
I certainly will email you. I also found just googling "epidural cysts" gave me loads of info. Oh and I have travelled out of state to world recognized clinics and spent loads of money just to get the same answer I got here in my home town...not worth the risk..... So sick of running to the doctors...And the good news is....hahahahaha yes there is a little good news....sometimes nerves can heal all on their own...it all depends...Did you have an injury to your back that caused this cyst? Were you born with it? It is said that they are rare you know....great huh? I had a traumatic spinal tap in 2005...that's when I started having trouble walking...soon thereafter...Sorry I wrote a book...I will email you if you would like...I don't put my addy on here but after I write to you feel free to use my address and ask anything you like....It is frustrating I know....
Hugs,
Jan
Hope this made sense...lol..
P.s. I live in Connecticut
pps. you must've been posting when I was....ygm
You are the first person I have talked to that has the same issue LOL...That and the pp's that is! I think it can be drained but that involves implanting a shunt in your back to drain the cyst...and the results are iffy...to cut it out is a real danger for paralysis depending on where in the spine it is. Mine is on the spinal nerves. So while I have a hard time functioning right now at least I can still get around somewhat! Let me ask you Jac, do your feet go completely numb and then the bad pain comes? It is so weird. And getting off my feet completely is the only thing that makes it go away. My husband and I went to a concert a few weeks ago at the local Casino and my God, I kept looking at the wheelchairs lined up that the public can use. I should have, but that damn stubborness I have wouldn't allow it. What a jerk I was. I paid for pushing it all the following week. My feet couldn't touch the floor without hurting!...
I certainly will email you. I also found just googling "epidural cysts" gave me loads of info. Oh and I have travelled out of state to world recognized clinics and spent loads of money just to get the same answer I got here in my home town...not worth the risk..... So sick of running to the doctors...And the good news is....hahahahaha yes there is a little good news....sometimes nerves can heal all on their own...it all depends...Did you have an injury to your back that caused this cyst? Were you born with it? It is said that they are rare you know....great huh? I had a traumatic spinal tap in 2005...that's when I started having trouble walking...soon thereafter...Sorry I wrote a book...I will email you if you would like...I don't put my addy on here but after I write to you feel free to use my address and ask anything you like....It is frustrating I know....
Hugs,
Jan
Hope this made sense...lol..
P.s. I live in Connecticut
pps. you must've been posting when I was....ygm
hi ms lady...........
i suggest that you stick around and establish relationships....here...
because you will always run out of meds and eventually you will
find a way out of the madness.........
look at jan.............
God Bless you ms lady !
i am so glad to see you posting here afer so long and i hope you stay...
love you
thumper
i suggest that you stick around and establish relationships....here...
because you will always run out of meds and eventually you will
find a way out of the madness.........
look at jan.............
God Bless you ms lady !
i am so glad to see you posting here afer so long and i hope you stay...
love you
thumper
Hey! guess i was wrong after all.... sorry! there are people out there who care! you know, i guess it's easy to feel sorry for ourselves and want replies right away!
and like I said, some if you have been wonderful to me and I thank you for that!
I will stick around and see what happens. i don't get on a lot cuz I am busy, but, it's always nice to know someone who cares is near!
As for the cyst in my spine... I don't have a lot of info on it. They just "found" it a couple of months ago. Not sure how or when I got it, but have been having pain since I had an epidural with my 12 year old. It's just getting worse and worse. then when I was prg with my 8 year old it got totally unbearable! so....been to many docs. they tried saying i had fibromyalgia, and I really thought I did. but just found out it's def not that! which is a good thing.
Thanks Jan for sharing with me. Hope to get an email from you soon, haven't checked yet! lol
and thanks Thumper! you always make me feel welcome and better!
but gotta run and get some stuff done today. as much as i can. back is killing me today.... but, things need done no matter what. i took it easy yesterday, so today it's off to the real world! lol
thanks guys!
jac
and like I said, some if you have been wonderful to me and I thank you for that!
I will stick around and see what happens. i don't get on a lot cuz I am busy, but, it's always nice to know someone who cares is near!
As for the cyst in my spine... I don't have a lot of info on it. They just "found" it a couple of months ago. Not sure how or when I got it, but have been having pain since I had an epidural with my 12 year old. It's just getting worse and worse. then when I was prg with my 8 year old it got totally unbearable! so....been to many docs. they tried saying i had fibromyalgia, and I really thought I did. but just found out it's def not that! which is a good thing.
Thanks Jan for sharing with me. Hope to get an email from you soon, haven't checked yet! lol
and thanks Thumper! you always make me feel welcome and better!
but gotta run and get some stuff done today. as much as i can. back is killing me today.... but, things need done no matter what. i took it easy yesterday, so today it's off to the real world! lol
thanks guys!
jac
I found out the hard way as well that opiates only cause rebound pain when taken long term and neurontin and elavil have helped me. I am also a chronic pain patient but please try and understand that talk of pills, etc. is upsetting to many and can trigger a relapse in the vulnerable. It took me a long time to get that....so basically, what Tim said.I have Lupus, titanium rods, and peripheral neuropathy and I still do NOT suggest opiates. Try and taper off as low as you can and stop....seek help...talk to the Dr. Maybe he will work with you by putting you on a taper. Please don't be judgemental of the board until you have given it a fair chance....these people here will help you more than most and truly care....they have saved me....best wishes...Sharonn
Hi Jac, a pain mangement specialist is one who specializes in chronic pain and look for alternative ways, other than narotics, to manage that pain. They might try injections to the areas above and below the location of your cyst, or trial you on some meds such as cymbalta and other such methods....the hospital that I work for specializes in pain management. Good luck to you :0)
hello ms lady !!!!!!!!!!!
how are you?
love ya
thumper
how are you?
love ya
thumper
Sharon, thank you for explaining what Tim meant! and I am sorry. I guess I didn't think of it that way, and now I feel very bad, will do a new post saying sorry! I feel stupid for not thinking about it that way.
I will give the board a fair chance. I will stop talking about taking the pills and ask for advice and give encouagement. Thanks again Sharon!!
And thank you Dawn, for explaining pain mangement specialist is! i really think that would be a good course of action for me. to get off the pills and find an alternative way to deal with the pain. that is what i wanted all along. I hate pp and what they do! and i just want to be pp free more then anything. Just also want the pain to stop!! but thanks again!
Thumper!!
I am haning in there! taking it one minute at a time. and one day. Not thinking into the future right now. I can't wait to get into the pain management specilist! I think that will be good for me. very expensive, but hopefully very well worth it!
Thank you everyone for being here for me and all the advice!!! I'm sorry I was such a b**ch!!! I didn't mean to be so very selfish and demanding!!!
anyway, gots to go get stuff done! thank you everyone for being here for me!
GOD BLESS TO ALL
Jac
I will give the board a fair chance. I will stop talking about taking the pills and ask for advice and give encouagement. Thanks again Sharon!!
And thank you Dawn, for explaining pain mangement specialist is! i really think that would be a good course of action for me. to get off the pills and find an alternative way to deal with the pain. that is what i wanted all along. I hate pp and what they do! and i just want to be pp free more then anything. Just also want the pain to stop!! but thanks again!
Thumper!!
I am haning in there! taking it one minute at a time. and one day. Not thinking into the future right now. I can't wait to get into the pain management specilist! I think that will be good for me. very expensive, but hopefully very well worth it!
Thank you everyone for being here for me and all the advice!!! I'm sorry I was such a b**ch!!! I didn't mean to be so very selfish and demanding!!!
anyway, gots to go get stuff done! thank you everyone for being here for me!
GOD BLESS TO ALL
Jac
